December has started out on a good note. Let's hope we can keep it
going! Since Charlotte has been home from the hospital, she has been doing
really well! She is 14 lbs now and gaining weight really well. We had a follow
up with her GI doctor, and she is really impressed about how well Charlotte is
doing with the tube placed back in her stomach. Because Charlotte is
continuously fed for 24 hours, she has an overgrowth of bacteria in her belly
due to the high PH level, and so the GI doctor has placed her on a medication
called Flagyl to help her stomach get rid of all the bacteria until she can
tolerate normal, large volume meals every three hours. It is not erythromycin,
and it seems to be working well! We will start compressing her meals down
slowly until she tolerates a large meal every three hours. We also had a follow
up with her lung doctor, and they have decided to allow Charlotte to take her
oxygen off for 4 hours at a time during the day! This is a huge burden lifted
because now we don't have to lug the oxygen tank with us to doctors
appointments and on walks. Less tubes equals more freedom. Charlotte looks so
much healthier and older without the breathing tube on her face. Also, the lung
doctor decided that Charlotte does not need to take her diuretic medicine
anymore. This medicine was helping Charlotte get rid of all the fluid in her
body that was staying in her heart and lungs. Now that her heart and lungs have
healed, they don't see any fluid at all. Diuretics can cause stomach cramping,
abdominal pain, and vomiting, so this is another step in the right direction
for her stomach! Charlottes
red blood cell count is also improving. Anemia (low red blood cell counts) can
happen for a long time when a baby is born prematurely. Now that Charlotte is
older, she is making red blood cells well, and she hasn't required any red
blood cell transfusions. She had her 9 month pediatrician follow up, and the
pediatrician was so impressed about how well she's doing. In other exciting
news, Charlotte was able to meet Santa for the first time! Santa was visiting
the Baltimore Inner Harbor, and she got her picture taken with Santa and her family.
She is looking like a chubster! so great to hear her lungs are healing and a break from the o2. great steps forward. enjoy your first christmas as a family. Nothing like it at all.
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